In July 2017 I went on a ride in support of a young lad by the name of Jaxon, who suffers from ROHHAD, a very rare disease.
Jaxon had a wish to ride on a motorcycle. A chap by the name of Trevor learned of this and organized this mid-week ride. Overall there was about 60 bikes involved. A group of bikers came in from Camrose, including Tara with her trike. And that’s where Jaxon rode, like royalty almost, on her trike with his oxygen strapped on the back.
Jaxon was presented with a vest, skull mask and gloves. He never stopped smiling the whole time.



